M.Sweet

Michelle Sweet

Dr. Stacy Stuewe

English 1301

6/10/2016

Tana Baby

For a while my youngest daughter kept having these weird reactions, and she was getting sick all the time. I kept taking her to the doctors, and of course “nothing was wrong with her”. In other word’s there were a few minor things here and there. Since it was an, “easy fix”, the doctors would give her some meds, (half of which did not work). Well she started running high fevers daily even with meds every 3-4 hours non-stop a day for 3-4 months. We would have hospital visits and doctor visits many many times over and over. Of course, “it’s nothing”. Well finally I was tired of it.

So I had found a new doctor which I than changed all my children to that doctor’s office. Immediately the doctor stated running test, blood work, x-rays, etc.… There was one day when she was 13 months old she ran a fever so bad it was jumping 2 degrees every 30 mins. I called 911 and they came out to check her temperature. It was 104.8. Before 911 had come out, I had given her Tylenol just about 30-45 mins prior to them arriving. Lucky I did not have all my children with me so I rode with them to the hospital. It may just have been a virus or a cold. For the time being I just keep an eye on her. They got her fever down, and we went home.

Well long and behold that following week the new doctor we had switched too called. The test results were in, and devastating news came about that she had tested positive (allergy) for things I was feeding her on a daily basis’s. Some of her favorite foods were: eggs and peanut butter. Some of her results administered by the allergist ended up showing results of needing an EPI Pen just in case. Her inflammation level for her age was supposed to be 20 or less, but Nahtanhas’ was 116. A few other levels were too high or too low, but the inflammation was at a deadly high. At this point my heart sunk in my chest and I felt as though I could not breath. I was told to rush her to Cooks Children’s immediately so they can do a thrall check on her.

So from this point on things got crazy. I had taken Nahtanha took Cooks Children’s a little later because I had to get my other children situated. When we had arrived and got her checked in they started testing. I could hardly watch! My poor baby was having so much testing done and she was so scared. She did not understand what was going on. It was a terrifying ordeal. The results had finally come back. She had to be hospitalized, and put under quarantine until further notice. The next day it had been so late when we met with a Rare and Infectious Disease doctor. He then proceeded to ordered more testing again to rule out many kinds of diseases. We had discussed for a while about Tanas’ symptoms. Well finally after many many test again… Tana at 13 months of age had anemia, mono, staph infection in her brain, fever, and a few other things. So after much deliberation the doctor came back and concluded that Nahtanha had Kawasaki Disease.

I had never heard of Kawasaki Disease. I honestly thought that doctor was making a joke about a motorcycle. Anyways, she had stated that Tana needed a Triple Purified Antibody Transfusion (sorry I do not recall the medical term). I freaked out… I was crying and fearful for my baby. We did not know what tomorrow held for her. After much time passed, I could tell you what tomorrow had held for Tana. It included a cardiologist with her ECO and EKG results. They showed abnormalities. At 15 months Tana was diagnosed with Coronary Artery Disease and Anonymity of Coronary Artery. Later I found out that she also had a hole in her heart. The hole healed up, but there was also a heart murmur. So now we been working with an allergist, pcp, rare and infectious disease, cardiologist, GI and soon ENT all within days. Little did we know this was just the beginning. That Tana would end up needing dermatologist, eye doctor, developmental therapist (not including dentist and other docs), and we have not finished yet. To this day she is now at 30 months old and doing okay. We will have a lot to work on.